Me, My MS and I

Dee Dee, Johnny, Joey et al…..

After a conversation with some of my fellow #msposse mates on Twitter about what we name our MS lesions, I revealed I’ve named mine after The Ramones, so I thought I’d share it on here too. Some people also name the floaters in their vision. One lady has named her two biggest lesions Ed and Brian.

It may sound flippant or childish, but I think it’s a fun way to personalise them and they are, after all, part of my body, and I’d rather embrace them and ‘make peace’ with them than bemoan their existence – they aren’t going anywhere any time soon!

I’m not entirely sure why I chose The Ramones, but the number of band members and the number of my lesions tally, and I love the band, and so it became! Although if the number of my lesions increases, I’ll have to add some more names and they’ll perhaps become ‘honourary’ members of my Ramones. Somehow I don’t think Roger or Nigel would fit in with the theme, so this may take some serious thinking!

As people living with MS, it never ceases to amaze me how much we rock! Faced with adversity at times, we never lose our sense of humour and carry on regardless. As the hashtag we use on Twitter says, #MSersRock : )


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