Me, My MS and I


What Does Monsterski4 Mean To Me?

When I first heard about Monsterski4 after joining Twitter, I was amazed. I had no idea people put themselves through such physical hardship, even if they love skiing, to raise money for charity. It makes me proud of the team for stepping forward and making the conscious decision to go to such lengths to help the MS Trust, and subsequently MSers as a whole, by raising money in this way. It could be all too easy to raise money in a less challenging way (and there is absolutely nothing wrong with that!) but I feel the challenge of skiing 5 Everests in 5 days metaphorically represents the challenge that is life with MS.
 
It’s rather difficult to express what Monsterski4 means to me (although I’ll give it my best shot!) even if I know how it makes me feel. The emotions are difficult to translate to the written word: I’m humbled, proud and quite frankly astounded that the Mosterski4 team push themselves this far to raise money. I’m also very grateful: the MS Trust provides a fabulous service for people with MS and their families and friends, and without fundraisers like the Monsterski4 team and others, it would be much more difficult for the MS Trust to provide the services it does.

In many ways, MS is a ‘silent’ condition – there are few outward signs other than walking with difficulty or using a wheelchair or walking stick – and as such is a very much forgotten disease. It is often little thought about except by those it affects and those who know people with MS. Therefore, it’s humbling that people who don’t have MS would support Mike in Monsterski4 and push themselves to such extremes to benefit the MS Trust. In the harsh world that we now live, the team must be praised for their generosity, selflessness and travail. Although it’s not all bad: they do enjoy skiing too!

I must also confess to a certain amount of envy: I’d love to be physically able to ski 5 Everests in 5 days, but I’d also love to be able to ski in the first place! Something I’m not terribly proud to admit to, but I felt I should be as honest as possible.

This article may be about what Monsterski4 means to me, but I feel that Mike deserves a rather large mention. I may not know Mike, but my uncle was in the RAF for many years, and I know what RAF men are made of: strong stuff. It’s testament to Mike as a person that he could rouse this team to push themselves to such extremes and speaks of an extraordinary man: I don’t know many people who’d take on this challenge for charity, even if they do love to ski!

If you take one thing from reading about this challenge, let it be inspiration. Inspiration not only to fundraise, but also inspiration from Mike who battles his MS every step of the way.  And don’t forget to support this fabulous team on their monstrous Monsterski4 challenge!

The best of luck to the Monsterski4 Team!

You can read all about the Monsterski4 challenge and sponsor the team at: http://www.monsterski4.com/ 


Happy New Year!

As the new year is now in full swing, I look back on the past year with a certain amount of astonishment at my accomplishments, and look ahead to the coming year with excitement. To many the accomplishments may seem small, but to me they are huge. I intend to build on and improve on them and add more to the list this year. Things look bright and wonderful and I sense a rather fantastic year ahead.

Although my relapse is in still raging away and I start (the postponed) intravenous steroids at 0930 for 3 days, my thoughts aren’t on that but on the things to come: already my ‘plans’ list is rapidly filling up with interesting projects and ideas.

I received a Wii, Sports Resort and Wii Fit Plus for christmas and plan to use the Wii Fit Plus to try and improve my balance. My MS means that my balance is pretty awful, and after a recommendation from my physio, I thought I’d give it a go: it’s a fab way to track progress and I can monitor if my balance is improving or not. I’ll add posts on how I get on and reviews of the exercises etc. I also hope the keep fit and yoga sections will be of benefit too. Currently I have balance exercises which my physio provided me with, and I’ll continue them in conjunction with the Wii, but I feel the Wii will be especially beneficial when it comes to tracking my progress – it’s very difficult to notice small improvements, but if the Wii records them, it’ll encourage me to make even more of an effort.

As I’ve mentioned in a couple of previous posts, I have a series of new blog posts in the pipeline (I’m keeping the theme under wraps at the moment) and I’ll be starting to post them soon. My energy levels are low, so writing and research time has been more limited than I would’ve liked. As opposed to posting them daily one after the other, it’s probably more prudent to have a little space between them. They’ll all have the same title, with a number denoting the place in the series and I’ll file them in a separate category.

One of my blog posts and a little article I’ve written have been posted on the Monsterski4 website. They do a fab, and very difficult, challenge to raise money for the MS Trust. To find out more, and to support them, visit the Monsterski4 site –  http://www.monsterski4.com/ Hopefully I’ll be doing some more writing this year and I have a couple of great projects to come soon which I can’t wait to get started on.

I’ve always been artistic and I’ve decided to take up some of my art hobbies again. How far they go, or what comes of them, I have no way of knowing, but I’m looking forward to getting back into it. It may help my dexterity a bit too; I can but try!

The idea to spraypaint my walking stick has almost come to fruition: I just need to decide on a final design and find the paints I want and then it’ll be done! I’ll get round to that asap. Once it’s done, I’ll post a picture, and perhaps even start a service to paint sticks if the results with mine are good enough.

Still taking 2mg of LDN daily, but I have to stop it for the steroids and then start again after. As yet, still no improvement in my symptoms, but I’m hoping to see some great results after my relapse abates.

I’ve decided to apply for a disabled blue badge for cars as I find walking difficult and can’t walk for very long, and it means that whoever is taking me out in their car can park closer to the supermarket etc. I contacted the local authority – they were really helpful and the forms are in the post! It’s so easy: all I need to do is complete a form, add 2 passport sized photos, and a Dr’s assessment of my condition and difficulties. Hopefully my application is accepted as it’ll make a huge difference to my life and make getting about that little bit easier.

Another tattoo will probably be added to my body this year too…..

The future’s bright. The future’s mine to make.



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