Me, My MS and I

Happy New Year!

As the new year is now in full swing, I look back on the past year with a certain amount of astonishment at my accomplishments, and look ahead to the coming year with excitement. To many the accomplishments may seem small, but to me they are huge. I intend to build on and improve on them and add more to the list this year. Things look bright and wonderful and I sense a rather fantastic year ahead.

Although my relapse is in still raging away and I start (the postponed) intravenous steroids at 0930 for 3 days, my thoughts aren’t on that but on the things to come: already my ‘plans’ list is rapidly filling up with interesting projects and ideas.

I received a Wii, Sports Resort and Wii Fit Plus for christmas and plan to use the Wii Fit Plus to try and improve my balance. My MS means that my balance is pretty awful, and after a recommendation from my physio, I thought I’d give it a go: it’s a fab way to track progress and I can monitor if my balance is improving or not. I’ll add posts on how I get on and reviews of the exercises etc. I also hope the keep fit and yoga sections will be of benefit too. Currently I have balance exercises which my physio provided me with, and I’ll continue them in conjunction with the Wii, but I feel the Wii will be especially beneficial when it comes to tracking my progress – it’s very difficult to notice small improvements, but if the Wii records them, it’ll encourage me to make even more of an effort.

As I’ve mentioned in a couple of previous posts, I have a series of new blog posts in the pipeline (I’m keeping the theme under wraps at the moment) and I’ll be starting to post them soon. My energy levels are low, so writing and research time has been more limited than I would’ve liked. As opposed to posting them daily one after the other, it’s probably more prudent to have a little space between them. They’ll all have the same title, with a number denoting the place in the series and I’ll file them in a separate category.

One of my blog posts and a little article I’ve written have been posted on the Monsterski4 website. They do a fab, and very difficult, challenge to raise money for the MS Trust. To find out more, and to support them, visit the Monsterski4 site – Hopefully I’ll be doing some more writing this year and I have a couple of great projects to come soon which I can’t wait to get started on.

I’ve always been artistic and I’ve decided to take up some of my art hobbies again. How far they go, or what comes of them, I have no way of knowing, but I’m looking forward to getting back into it. It may help my dexterity a bit too; I can but try!

The idea to spraypaint my walking stick has almost come to fruition: I just need to decide on a final design and find the paints I want and then it’ll be done! I’ll get round to that asap. Once it’s done, I’ll post a picture, and perhaps even start a service to paint sticks if the results with mine are good enough.

Still taking 2mg of LDN daily, but I have to stop it for the steroids and then start again after. As yet, still no improvement in my symptoms, but I’m hoping to see some great results after my relapse abates.

I’ve decided to apply for a disabled blue badge for cars as I find walking difficult and can’t walk for very long, and it means that whoever is taking me out in their car can park closer to the supermarket etc. I contacted the local authority – they were really helpful and the forms are in the post! It’s so easy: all I need to do is complete a form, add 2 passport sized photos, and a Dr’s assessment of my condition and difficulties. Hopefully my application is accepted as it’ll make a huge difference to my life and make getting about that little bit easier.

Another tattoo will probably be added to my body this year too…..

The future’s bright. The future’s mine to make.


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